Archive for July, 2008

wining

So, a glass and a half in here, so no guarantees on any kind of clarity or put-together-ness here. At least I’m correcting my spelling mistakes.  Sometimes when I’m bored, and when I’m not, I surf over to blogs from normalworld. Blogs of friends and acquaintances who are living normal lives, with normal, expected ups and downs. They’re bittersweet. Part of me enjoys the escape from my new reality; a chance to bob in the light waters of a normal existence. It’s fun to imagine myself in their shoes……. what if I was doing a blog on how to make a foam floral wreath? What if I did a cooking blog, showcasing foods I’d made? What if I had pages and pages of all the wonderful things I’d just bought for my new baby? But, no. That was the sweet. Here comes the bitter: I get to blog about my dead baby. Harsh, yes. So what? It’s not any less true, is it? She’s not any less dead, if I use euphemisms like ‘passed away’ or ‘went to sleep’… she’s dead. Period. I get to write about how I managed to get through the mall, the swath of newborns and 10 month olds without dying a little more on the inside. I didn’t have to call my husband 3 times to help me through a “rough patch”. I didn’t have to squeeze Evan 6 times and tell him how much I love him, just to feel him, and know he is alive, with me. Nope, no experimental cooking blog for me. I hate this new life. I hate that it’s forever, and I hate that I will always, always miss her. I want her here with me.  How can this be too much to ask? How can this be real?  A year ago, I was finishing up work, buying cute baby things, enjoying my last few weeks as a mother of one, actually feeling sad at the thought of not having Evan all to myself… what a joke. We are planning some special things for Isla’s first birthday anniversary. More on that later. Now I just feel like sinking. Could use a good dose of Fuckitol.

Bereaved parent’s new normal…

Sigh. I am so tired. Found this at my favourite (?) infant loss community online. Pretty much describes what life’s like lately.
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This is now what “normal” is…

Normal is having tears waiting behind every smile when you realize someone important is missing from all the important events in your family’s life.

Normal for me is trying to decide what to take to the cemetery for Birthdays, Christmas, Thanksgiving, New Years, Valentine’s Day, and Easter.

Normal is feeling like you know how to act and are more comfortable with a funeral than a wedding or birthday party..

Normal is feeling like you can’t sit another minute without getting up and screaming, because you just don’t like to sit through anything.

Normal is not sleeping very well because a thousand what if’s & why didn’t I’s go through your head constantly.

Normal is reliving that day continuously through your eyes and mind, holding your head to make it go away.
Normal is having the TV on the minute I walk into the house to have noise, because the silence is deafening.
Normal is staring at every baby who looks like he is my baby’s age. And then thinking of the age she would be now and not being able to imagine it. Then wondering why it is even important to imagine it, because it will never happen.

Normal is every happy event in my life always being backed up with sadness lurking close behind, because of the hole in my heart.

Normal is telling the story of your child’s death as if it were an everyday, commonplace activity, and then seeing the horror in someone’s eyes at how awful it sounds. And yet realizing it has become a part of my “normal”.

Normal is each year coming up with the difficult task of how to honor your child’s memory and her birthday and survive these days. And trying to find the balloon or flag that fit’s the occasion. Happy Birthday? Not really.

Normal is my heart warming and yet sinking at the sight of something special my baby loved. Thinking how she would love it, but how she is not here to enjoy it.

Normal is having some people afraid to mention my baby.

Normal is making sure that others remember her.

Normal is after the funeral is over everyone else goes on with their lives, but we continue to grieve our loss forever.

Normal is weeks, months, and years after the initial shock, the grieving gets worse sometimes, not better.

Normal is not listening to people compare anything in their life to this loss, unless they too have lost a child. NOTHING. Even if your child is in the remotest part of the earth away from you – it doesn’t compare. Losing a parent is horrible, but having to bury your own child is unnatural.

Normal is taking pills, and trying not to cry all day, because I know my mental health depends on it.

Normal is realizing I do cry everyday.

Normal is disliking jokes about death or funerals, bodies being referred to as cadavers, when you know they were once someone’s loved one.

Normal is being impatient with everything and everyone, but someone stricken with grief over the loss of your child.

Normal is sitting at the computer crying, sharing how you feel with chat buddies who have also lost a child.

Normal is feeling a common bond with friends on the computer in England, Australia, Canada, the Netherlands and all over the USA, but yet never having met any of them face to face.

Normal is a new friendship with another grieving mother, talking and crying together over our children and our new lives.

Normal is not listening to people make excuses for God. “God may have done this because…” I love God, I know that my baby is in heaven, but hearing people trying to think up excuses as to why healthy babies were taken from this earth is not appreciated and makes absolutely no sense to this grieving mother.

Normal is being too tired to care if you paid the bills, cleaned the house, did laundry or if there is any food.

Normal is wondering this time whether you are going to say you have two children or one, because you will never see this person again and it is not worth explaining that my baby is in heaven. And yet when you say you have one child to avoid that problem, you feel horrible, as if you have betrayed your baby.

Normal is avoiding McDonald’s and Burger King playgrounds because of small, happy children that break your heart when you see them.

Normal is asking God why he took your child’s life instead of yours and asking if there even is a God.

Normal is knowing I will never get over this loss, in a day or a million years.

And last of all, Normal is hiding all the things that have become “normal” for you to feel, so that everyone around you will think that you are “normal”.

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Oh how achingly true this all is. Reading it just brings so much of what I expertly suppress every day to the surface. My loss is everywhere. Everywhere. Today coming back into Canada from the US, Tim mentioned that we have to pick up passport renewal forms, 3 of them this time, as Evan’s never had one. I looked at him and said “not four” and he said “I know, I was thinking it too.” There are just so, so many reminders of the fact that our daughter is not here every single day. It’s exhausting, feeling them, attuning to them, wasting energy on them. We are being reminded over and over again that she’s not here, nor will she ever be. We’ll never be that perfect family of four. Even if we do go on to have another child, we’ll still never be it. We’d then be a fractured family of five. There is no win. I used to be so relieved when families I’d known who’d lost would conceive again, as though I thought they were ‘fixed’. Oh, the naivete. What I wouldn’t give for a dose of that right now.

God I’m missing you tonight, my beautiful girl. Every second I feel your absence, a gaping, empty hole in my life where you should be. There are so many things I do that I shouldn’t be able to. Spending hours online, staying up late, getting drunk camping with friends. None of this should be my life right now. I should be on maternity leave, with my vibrant 10 month old, pushing you on the swing at the park, splashing with you in the bath, singing you songs goodnight. My body should be providing milk for you, I should be buying you fuzzy pajamas for fall. All of this is so wrong, so confusing and messed up. I have learned to ‘get by’ in the world every day; survive, if you will, but I have not learned how to live again. How to desire, or want or thrive. I am basically existing. All I think about every second of every day my sweet baby is you, and how incredibly unjust it is that you’re not here. You were an innocent child, whose life was taken before you had a chance to take one breath of sweet air, hear our voices tell you we love you, feel our hands stroke your newborn soft skin, feel a gentle kiss from your brother, who was so excited to meet you. How can any of this be real? How can it be forever? How can I possibly go on to lead a ‘full’ and ‘meaningful’ life, as I’m promised I will? Oh baby girl, I ache all the way through for you. I am wrung out, there is nothing left. Nothing but pain. I am so tired.

Ten Months Today.

So, here we are. I thought of it first thing this morning. Actually, last night, while reading The Shack in bed. I remember 10 months ago, thinking how I hadn’t felt any kicking in a while… having 2 strong iced teas before bed, and got one little kick. Enough to suffice for the night. The next morning, still nothing, so off we headed to the midwife. She found the heartbeat right away, then expressed how scared she was (uh, thanks?). So off for an NST… lots of things right off the bat, that now were so obviously pointing to something being wrong, that I completely ignored, or denied. Now they are huge, then they were just oddities. Babies didn’t die. Especially not mine. The heart rate that didn’t vary by stimuli, the inability to get a reaction from her, or movement. The heartrate dipping into the 30s. How could I have been so naive? I shake my head now at how utterly clueless to the possibility of something being ’seriously’ wrong I was. I thought she was just choosing not to react to the stimuli… I can hardly believe how clueless I was. Truly.

There is so much to say on an anniversary like this, and not enough words or time to say it all. What more do I really need to say though, besides I miss you baby girl, every second, every day and god dammit I’m just so sorry. :( I love you so much. We all do, and wish you were here with us, getting to know your amazing big brother, who would be so good to you.. feeling sand between your toes, grass between your fingers, wind in your hair, sun on your face. None of it will ever be, and I am so sad about that.  There is not enough sadness in the world to fill the hole in my heart where you are. God I wish desperately you were here with us.

xoxoxoxox mommy.

the fifteenth

is coming up again. 10 of them since my daughter died. So she’d be 10 months. Well established on finger foods… cheerios… baby mum mums… I’d have finished making baby food by now. She’d be well into the 12 – 18 month old outfits.  When I try to gauge how the time that has passed feels, it is contradictory, in a way. Ten months is nearly a year, a length of time I thought would surely send me in leaps and bounds through the grief process. Yet, it is really nothing at all. It is a drop in the bucket. I still think of Isla a thousand times a day. I am still reminded constantly that my life is not how it should be; that there is a huge part missing. I remember initially, in the first 6 weeks, wondering and desperately seeking answers from anyone who’d been there, as to when I could expect to feel better. When would I not hurt so much, and feel so sad, and done with life. The answers I got were varied. Some books said the “average” recovery time for the loss of a child is anywhere from 2 – 10 years. I was devastated all over again. Ten years? Of feeling like this? No, I could not endure that. Maybe I’d be one of the ‘lucky’ ones, and get out by 2 years. Some grief experts said never. That you never stop mourning or grieving your baby. That blew my heart apart too. So here I am, nearly 10 months now. I am still so very raw. I think I do a good job of functioning on the surface. I can smile, laugh and play with Evan. I can socialize with friends, even enjoy wine and a night out. To the untrained eye, I’m sure I look pretty ‘normal’, and you wouldn’t even know the loss I’ve endured. But it’s there with me. Always there with me. Sitting right next to me, reminding me not to laugh too hard, or enjoy that drink too much. Because, after all, my baby died.  So life for me will never be happy as it was, ever.

And that is a loss I will grieve until I die as well. There is nothing as lonely or alienating as watching a happy mother enjoying her baby, without even an inkling that something might go wrong. I remember that naivete. How I long for that now.  Now that hindsight is 20/20, I fully appreciate that naivete, and resent it in others. The best days of my life have already occurred. I will not ever be as happy as I was when I was pregnant with Isla, no matter how many more pregnancies I am blessed with.  I remember picking Evan up from playschool on his first or second day (early September) and treating him to an afternoon of pure fun; McDonalds, a new toy, splash park, etc. I did this because it was one of the last times it would be just him and me.  I was 37 weeks pregnant, 2 weeks from losing my girl. I nearly cried as I looked at him devouring his nuggets, wondering if I’d ever appreciate him so purely again, and embrace the intimate bond we have, before this new life blessed us. I don’t think there’s ever been a time in my life where everything felt so ‘right’ and I felt so complete. I was blessed, and I knew it.

Now my afternoons are almost always just Evan and me. And they are not like they were that day. I love him fiercely of course, and am completely aware of how precious his life is, but it is not the same. It never will be. Everything is different. Every single facet of my life is changed now.  My patience wears thin easily, I lack ambition to be a ‘good’ mom to him. I don’t relish life and embrace watching him grow up. Now I constanty worry that something equally tragic will befall him. Now that I know how easily life can be swept away. Even the life of a precious child. Never like in the movies, with all their happy endings. I had to turn CSI off when a woman delivered  early in the police car, due to an accident. I knew there would be no way the baby would die. It just isn’t Hollywood. I changed it before I had to see the happy ending.

It’s like I’m wearing tinted glasses, that change everything, just a little, forever. No one else can see through my glasses, and even if they try, they see a different reality than I do.  Like a hint at what it’s like, but without the depth of despair and hopelessness. I can’t explain how grief is for me, or how it feels to bury your own child (or cremate, as we did). And truly, I don’t think they want to think about it much. Why would they? It is the worst thing that can happen to a mother. And it happened to me. And I DO feel lonely, isolated and alienated most of the time.  God damn this life. Selfish as it may sound I know I should be grateful for life, knowing how precious it is, and I should appreciate the life I’ve been given. Why did this have to happen? What is the point of going on when my entire reason for being here is no longer here?
I miss you so much Isla.  God I hope you know that. I hope on some weird spiritual level that you know how much I love you, ache for you. Even when I can’t bear to look at your pictures, or talk about you, or when someone asks if Evan is my only child and I say yes. I hope you know it’s not out of lack of love that I sometimes don’t include you, but to save myself some anguish and pain from loving you so much, and missing you so desperately, that I cannot help but to steal myself a reprieve from the agony once in a while.  I think you already know this; you must, but I have to put it out there anyway.

Ten months. A drop in the bucket. I miss you so much baby girl. The hurt has not gone away at all, not in the least.

xxx ooo -forever.

mommy.